Thank you, next

Neurologist today.

Did not go well. We went over my symptoms and he feels they are not neurological.

He went on to suggest they are from stress.

Sigh.

I’ve been down this road before. Neurologists telling that my condition does not present as “typical.”

That doesn’t make it psychological.

He said people also don’t suffer from chronic vertigo. Which is false. Being a member of several vestibular/balance/dizziness communities, I can confirm that thousands of people suffer from chronic vertigo.

So, he already had my distrust.

But, EVEN IF the walking issues were somehow due to some kind of psychological compensation, which does happen after someone gets vertigo (which I also told him and he DENIED!!!! This is, indeed, a fact, proven to me when I have had severe vertigo in the past and explained to me by doctors and vestibular therapists)  I did not psychogenically develop cellulitis and swollen lymph nodes.

He referred me to a movement specialist. A partner of his. I don’t know how I feel about going. I don’t think this is a movement disorder. And, if it isn’t a neurological one, then I’m back to it’s because of these infections I keep getting.

K

It’s all apparently uphill from here

Vestibular therapy again today. My normal therapist was out so I worked with someone else.

She watched my balance issues and my body’s responses to exercises and basically said what my other therapist said: that this is not normal vertigo stuff and hopefully the neurologist could figure out what is happening.

She asked me if I have a family history of MS or Parkinson’s (I do not). She feels I should be thoroughly checked for either of these.

I still have an entire week until I see the neurologist and this is frustrating to say the least.

Oh yeah, my walking is actually getting worse, too.

I’m honestly not even afraid of what it can be. I’m more afraid of no one finding out what it is.